{"id":5027,"date":"2024-02-05T22:32:15","date_gmt":"2024-02-06T03:32:15","guid":{"rendered":"https:\/\/colpittsclinical.com\/?p=5027"},"modified":"2024-04-22T00:02:09","modified_gmt":"2024-04-22T04:02:09","slug":"feny-deritese-a-ritka-betegsegekre-a-ritka-betegsegek-napjanak-unneplese-alkalmabol","status":"publish","type":"post","link":"https:\/\/colpittsclinical.com\/hu\/feny-deritese-a-ritka-betegsegekre-a-ritka-betegsegek-napjanak-unneplese-alkalmabol\/","title":{"rendered":"F\u00e9ny der\u00edt\u00e9se a ritka betegs\u00e9gekre: A ritka betegs\u00e9gek napj\u00e1nak \u00fcnnepl\u00e9se"},"content":{"rendered":"<p>A ritka betegs\u00e9gek napja, amelyet minden \u00e9vben febru\u00e1r utols\u00f3 napj\u00e1n tartanak, fontos eml\u00e9keztet\u0151 a ritka betegs\u00e9ggel \u00e9l\u0151k el\u0151tt \u00e1ll\u00f3 kih\u00edv\u00e1sokra, valamint a tudatoss\u00e1g \u00e9s a meg\u00e9rt\u00e9s n\u00f6vel\u00e9s\u00e9nek fontoss\u00e1g\u00e1ra a sz\u00e9lesebb k\u00f6z\u00f6ss\u00e9gben. Ez a nemzetk\u00f6zi kamp\u00e1ny arra t\u00f6rekszik, hogy feler\u0151s\u00edtse a ritka betegs\u00e9gek \u00e1ltal \u00e9rintettek hangj\u00e1t, el\u0151seg\u00edtve az emp\u00e1ti\u00e1t, a t\u00e1mogat\u00e1st \u00e9s a kutat\u00e1si er\u0151fesz\u00edt\u00e9seket, hogy jav\u00edtsa milli\u00f3k \u00e9let\u00e9t szerte a vil\u00e1gon.<\/p>\n<p><strong>Ritka betegs\u00e9gek meg\u00e9rt\u00e9se<\/strong>A ritka betegs\u00e9g olyan \u00e1llapotk\u00e9nt van defini\u00e1lva, amely a lakoss\u00e1g kis r\u00e9sz\u00e9t \u00e9rinti a az \u00e1ltal\u00e1nos n\u00e9pess\u00e9ghez k\u00e9pest. B\u00e1r az egyes ritka betegs\u00e9gek ritk\u00e1k lehetnek, egy\u00fcttesen a glob\u00e1lis lakoss\u00e1g jelent\u0151s r\u00e9sz\u00e9t \u00e9rintik. Az Eg\u00e9szs\u00e9g\u00fcgyi Nemzeti Int\u00e9zetek (NIH) szerint t\u00f6bb mint 6000 azonos\u00edtott ritka betegs\u00e9g l\u00e9tezik, \u00e9s vil\u00e1gszerte k\u00f6r\u00fclbel\u00fcl 400 milli\u00f3 ember \u00e9l valamelyikkel.<\/p>\n<p><strong>A ritka betegs\u00e9ggel val\u00f3 egy\u00fctt\u00e9l\u00e9s kih\u00edv\u00e1sai<\/strong>A ritka betegs\u00e9ggel val\u00f3 egy\u00fctt\u00e9l\u00e9s gyakran egyedi neh\u00e9zs\u00e9gek el\u00e9 \u00e1ll\u00edtja az \u00e9rintetteket \u00e9s csal\u00e1djaikat. Az inform\u00e1ci\u00f3k \u00e9s a szak\u00e9rtelem sz\u0171k\u00f6ss\u00e9ge miatt a diagn\u00f3zis fel\u00e1ll\u00e1sa k\u00e9shet, ami id\u0151nk\u00e9nt hosszan tart\u00f3 bizonytalans\u00e1ghoz \u00e9s szorong\u00e1shoz vezet. Ezenk\u00edv\u00fcl a korl\u00e1tozott kezel\u00e9si lehet\u0151s\u00e9gek \u00e9s a tudatoss\u00e1g hi\u00e1nya az elszigetelts\u00e9g \u00e9rz\u00e9s\u00e9t, valamint a rendelkez\u00e9sre \u00e1ll\u00f3 er\u0151forr\u00e1sok hi\u00e1ny\u00e1t eredm\u00e9nyezheti.<\/p>\n<p><strong>K\u00f6z\u00f6ss\u00e9gek er\u0151s\u00edt\u00e9se<\/strong>A ritka betegs\u00e9gek napja c\u00e9lja, hogy a ritka betegs\u00e9ggel \u00e9l\u0151k sz\u00e1m\u00e1ra lehet\u0151s\u00e9get biztos\u00edtson t\u00f6rt\u00e9neteik megoszt\u00e1s\u00e1ra, a hasonl\u00f3 kih\u00edv\u00e1sokkal k\u00fczd\u0151kkel val\u00f3 kapcsolatteremt\u00e9sre, valamint a fokozott t\u00e1mogat\u00e1s\u00e9rt val\u00f3 ki\u00e1ll\u00e1sra, ez\u00e1ltal meger\u0151s\u00edtve \u0151ket. A k\u00f6z\u00f6ss\u00e9gi m\u00e9di\u00e1s kamp\u00e1nyokon, helyi rendezv\u00e9nyeken \u00e9s oktat\u00e1si kezdem\u00e9nyez\u00e9seken kereszt\u00fcl a nap arra t\u00f6rekszik, hogy lebontsa a korl\u00e1tokat, \u00e9s egys\u00e9g\u00e9rzetet teremtsen a ritka betegs\u00e9gek k\u00f6z\u00f6ss\u00e9g\u00e9n bel\u00fcl.<\/p>\n<p><strong>A tudatoss\u00e1g fontoss\u00e1ga<\/strong>A Ritka Betegs\u00e9gek Napj\u00e1nak egyik els\u0151dleges c\u00e9lja, hogy felh\u00edvja a nagyk\u00f6z\u00f6ns\u00e9g, az eg\u00e9szs\u00e9g\u00fcgyi szakemberek \u00e9s a d\u00f6nt\u00e9shoz\u00f3k figyelm\u00e9t a t\u00e9m\u00e1ra. A fokozott tudatoss\u00e1g jobb meg\u00e9rt\u00e9shez, kor\u00e1bbi diagn\u00f3zishoz \u00e9s a ritka betegs\u00e9ggel \u00e9l\u0151k fokozott t\u00e1mogat\u00e1s\u00e1hoz vezethet. Emellett arra \u00f6szt\u00f6n\u00f6zheti a kutat\u00f3kat, hogy \u00faj utakat fedezzenek fel a kezel\u00e9sek \u00e9s a lehets\u00e9ges gy\u00f3gym\u00f3dok ter\u00e9n.<\/p>\n<p><strong>Kutat\u00e1s \u00e9s innov\u00e1ci\u00f3<\/strong>A kutat\u00e1s ter\u00e9n el\u00e9rt fejl\u0151d\u00e9s elengedhetetlen a ritka betegs\u00e9ggel \u00e9l\u0151k speci\u00e1lis ig\u00e9nyeinek kiel\u00e9g\u00edt\u00e9s\u00e9hez. A ritka betegs\u00e9gek napja kataliz\u00e1tork\u00e9nt szolg\u00e1l a fokozott finansz\u00edroz\u00e1s \u00e9s az egy\u00fcttm\u0171k\u00f6d\u00e9s \u00f6szt\u00f6nz\u00e9s\u00e9re a kutat\u00f3k, tud\u00f3sok \u00e9s gy\u00f3gyszeripari v\u00e1llalatok k\u00f6z\u00f6tt. Az\u00e1ltal, hogy r\u00e1vil\u00e1g\u00edt a ritka betegs\u00e9gek s\u00fcrg\u0151ss\u00e9g\u00e9re \u00e9s jelent\u0151s\u00e9g\u00e9re, a nap hozz\u00e1j\u00e1rul az innovat\u00edv ter\u00e1pi\u00e1k kifejleszt\u00e9s\u00e9hez \u00e9s a jobb eg\u00e9szs\u00e9g\u00fcgyi eredm\u00e9nyek el\u00e9r\u00e9s\u00e9hez.<\/p>\n<p>\u00cdgy vehetsz r\u00e9szt:<\/p>\n<ol>\n<li><strong>Ossza meg t\u00f6rt\u00e9neteit:<\/strong> Oszd meg a ritka betegs\u00e9ggel \u00e9l\u0151k szem\u00e9lyes tapasztalatait vagy t\u00f6rt\u00e9neteit a k\u00f6z\u00f6ss\u00e9gi m\u00e9dia fel\u00fcleteken a hivatalos hashtagek haszn\u00e1lat\u00e1val.<\/li>\n<li><strong>Vegyen r\u00e9szt esem\u00e9nyeken:<\/strong> Vegyen r\u00e9szt a betegk\u00e9pviseleti csoportok vagy eg\u00e9szs\u00e9g\u00fcgyi szervezetek \u00e1ltal szervezett helyi esem\u00e9nyeken, hogy t\u00f6bbet tudjon meg az egyes ritka betegs\u00e9gekr\u0151l, \u00e9s kimutassa t\u00e1mogat\u00e1s\u00e1t.<\/li>\n<li><strong>K\u00e9pezze mag\u00e1t \u00e9s m\u00e1sokat:<\/strong> Sz\u00e1njon id\u0151t arra, hogy t\u00e1j\u00e9koz\u00f3djon \u00e9s t\u00e1j\u00e9koztasson m\u00e1sokat a ritka betegs\u00e9gekr\u0151l, azok hat\u00e1sair\u00f3l, valamint az \u00e9rintettek \u00e1ltal elviselt neh\u00e9zs\u00e9gekr\u0151l.<\/li>\n<li><strong>Adom\u00e1nyoz\u00e1s:<\/strong> J\u00e1ruljon hozz\u00e1 a ritka betegs\u00e9gek kutat\u00e1s\u00e1hoz, \u00e9s t\u00e1mogassa a jobb kezel\u00e9sek\u00e9rt \u00e9s a fokozott tudatoss\u00e1g\u00e9rt dolgoz\u00f3 szervezeteket.<\/li>\n<li><strong>T\u00e1mogat\u00f3<\/strong> Szorgalmazza az olyan politik\u00e1kat, amelyek el\u0151t\u00e9rbe helyezik a ritka betegs\u00e9gek kutat\u00e1s\u00e1t, a kezel\u00e9sekhez val\u00f3 hozz\u00e1f\u00e9r\u00e9st \u00e9s az \u00e9rintettek t\u00e1mogat\u00e1s\u00e1t.<\/li>\n<\/ol>\n<p>A ritka betegs\u00e9gek napja er\u0151teljes eml\u00e9keztet\u0151 arra, hogy minden egyes ember \u2013 \u00e1llapot\u00e1nak ritkas\u00e1g\u00e1t\u00f3l f\u00fcggetlen\u00fcl \u2013 meg\u00e9rdemli a egy\u00fctt\u00e9rz\u00e9st, a meg\u00e9rt\u00e9st \u00e9s a hozz\u00e1f\u00e9r\u00e9st a lehet\u0151 legjobb ell\u00e1t\u00e1shoz. Az\u00e1ltal, hogy glob\u00e1lis k\u00f6z\u00f6ss\u00e9gk\u00e9nt \u00f6sszefogunk a ritka betegs\u00e9gek napj\u00e1n, l\u00e9trehozhatunk egy <a href=\"https:\/\/www.rarediseaseday.org\/\">befogad\u00f3bb \u00e9s t\u00e1mogat\u00f3bb vil\u00e1g<\/a> a ritka betegs\u00e9ggel \u00e9l\u0151k sz\u00e1m\u00e1ra rem\u00e9nyt teremtve egy szebb, eg\u00e9szs\u00e9gesebb j\u00f6v\u0151\u00e9rt.<\/p>\n<p>&nbsp;<\/p>\n<p><img data-recalc-dims=\"1\" fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-5037\" src=\"https:\/\/i0.wp.com\/colpittsclinical.com\/wp-content\/uploads\/2024\/02\/300-million.png?resize=346%2C181&#038;ssl=1\" alt=\"Vil\u00e1gszerte 300 milli\u00f3 ember \u00e9l ritka betegs\u00e9ggel\" width=\"346\" height=\"181\" srcset=\"https:\/\/i0.wp.com\/colpittsclinical.com\/wp-content\/uploads\/2024\/02\/300-million.png?w=600&amp;ssl=1 600w, https:\/\/i0.wp.com\/colpittsclinical.com\/wp-content\/uploads\/2024\/02\/300-million.png?resize=300%2C157&amp;ssl=1 300w\" sizes=\"(max-width: 346px) 100vw, 346px\" \/><\/p>\n<p>&nbsp;<\/p>\n<p><em><strong>Tov\u00e1bbi inform\u00e1ci\u00f3 a klinikai vizsg\u00e1latokr\u00f3l<\/strong><\/em><\/p>\n<p><a href=\"https:\/\/colpittsclinical.com\/hu\/how-travel-services-build-a-better-clinical-trial-travel-experience\/\">Hogyan \u00e9p\u00edtik ki az utaz\u00e1si szolg\u00e1ltat\u00e1sok a jobb klinikai vizsg\u00e1latok utaz\u00e1si \u00e9lm\u00e9ny\u00e9t?<\/a><\/p>\n<p><a href=\"https:\/\/colpittsclinical.com\/hu\/going-the-extra-mile-gas-vs-mileage-for-reimbursements\/\">Az extra m\u00e9rf\u00f6ld megt\u00e9tele<\/a><\/p>\n<p><a href=\"https:\/\/colpittsclinical.com\/hu\/colpitts-clinical-making-the-impossible-possible\/\">Lehet\u0151v\u00e9 t\u00e9ve a lehetetlent<\/a><\/p>\n<p>L\u00e1togasson el hozz\u00e1nk a\u00a0<a href=\"https:\/\/www.facebook.com\/ColpittsClinicalTrialTravel\/\">Facebook<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Rare Disease Day, observed on the last day of February each year, serves as a crucial reminder of the challenges faced by individuals living with rare diseases and the importance of raising awareness and understanding within the broader community. This international campaign seeks to amplify the voices of those affected by rare diseases, fostering empathy, [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5031,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[30],"tags":[],"class_list":["post-5027","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-diseases"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v28.3 (Yoast SEO v28.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Shedding Light on Rare Diseases: Celebrating Rare Disease Day - Colpitts Clinical<\/title>\n<meta name=\"description\" content=\"Rare Disease Day serves as a crucial reminder of the challenges faced by individuals living with rare diseases.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/colpittsclinical.com\/hu\/feny-deritese-a-ritka-betegsegekre-a-ritka-betegsegek-napjanak-unneplese-alkalmabol\/\" \/>\n<meta property=\"og:locale\" content=\"hu_HU\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Shedding Light on Rare Diseases: Celebrating Rare Disease Day\" \/>\n<meta property=\"og:description\" content=\"Rare Disease Day serves as a crucial reminder of the challenges faced by individuals living with rare diseases.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/colpittsclinical.com\/hu\/feny-deritese-a-ritka-betegsegekre-a-ritka-betegsegek-napjanak-unneplese-alkalmabol\/\" \/>\n<meta property=\"og:site_name\" content=\"Colpitts Clinical\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/ColpittsClinicalTrialTravel\/\" \/>\n<meta property=\"article:published_time\" content=\"2024-02-06T03:32:15+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-22T04:02:09+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/colpittsclinical.com\/wp-content\/uploads\/2024\/02\/rare-disease-lg-banner-2024.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1584\" \/>\n\t<meta property=\"og:image:height\" content=\"628\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"clinical\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Szerz\u0151:\" \/>\n\t<meta name=\"twitter:data1\" content=\"clinical\" \/>\n\t<meta name=\"twitter:label2\" content=\"Becs\u00fclt olvas\u00e1si id\u0151\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 perc\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/\"},\"author\":{\"name\":\"clinical\",\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/#\\\/schema\\\/person\\\/7f5c1f500aa2df676ac51a2c6236e2fd\"},\"headline\":\"Shedding Light on Rare Diseases: Celebrating Rare Disease Day\",\"datePublished\":\"2024-02-06T03:32:15+00:00\",\"dateModified\":\"2024-04-22T04:02:09+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/\"},\"wordCount\":582,\"publisher\":{\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/i0.wp.com\\\/colpittsclinical.com\\\/wp-content\\\/uploads\\\/2024\\\/02\\\/rare-disease-lg-banner-2024.png?fit=1584%2C628&ssl=1\",\"articleSection\":[\"Rare Diseases\"],\"inLanguage\":\"hu\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/\",\"url\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/\",\"name\":\"Shedding Light on Rare Diseases: Celebrating Rare Disease Day - Colpitts Clinical\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/i0.wp.com\\\/colpittsclinical.com\\\/wp-content\\\/uploads\\\/2024\\\/02\\\/rare-disease-lg-banner-2024.png?fit=1584%2C628&ssl=1\",\"datePublished\":\"2024-02-06T03:32:15+00:00\",\"dateModified\":\"2024-04-22T04:02:09+00:00\",\"description\":\"Rare Disease Day serves as a crucial reminder of the challenges faced by individuals living with rare diseases.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/#breadcrumb\"},\"inLanguage\":\"hu\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"hu\",\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/#primaryimage\",\"url\":\"https:\\\/\\\/i0.wp.com\\\/colpittsclinical.com\\\/wp-content\\\/uploads\\\/2024\\\/02\\\/rare-disease-lg-banner-2024.png?fit=1584%2C628&ssl=1\",\"contentUrl\":\"https:\\\/\\\/i0.wp.com\\\/colpittsclinical.com\\\/wp-content\\\/uploads\\\/2024\\\/02\\\/rare-disease-lg-banner-2024.png?fit=1584%2C628&ssl=1\",\"width\":1584,\"height\":628,\"caption\":\"Rare Disease Day 2024\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/colpittsclinical.com\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Shedding Light on Rare Diseases: Celebrating Rare Disease Day\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/#website\",\"url\":\"https:\\\/\\\/colpittsclinical.com\\\/\",\"name\":\"Colpitts Clinical\",\"description\":\"clinical trial travel management\",\"publisher\":{\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/colpittsclinical.com\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"hu\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/#organization\",\"name\":\"Colpitts Clinical\",\"url\":\"https:\\\/\\\/colpittsclinical.com\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"hu\",\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/i0.wp.com\\\/colpittsclinical.com\\\/wp-content\\\/uploads\\\/2017\\\/10\\\/cc-logo-212-1.png?fit=212%2C48&ssl=1\",\"contentUrl\":\"https:\\\/\\\/i0.wp.com\\\/colpittsclinical.com\\\/wp-content\\\/uploads\\\/2017\\\/10\\\/cc-logo-212-1.png?fit=212%2C48&ssl=1\",\"width\":212,\"height\":48,\"caption\":\"Colpitts Clinical\"},\"image\":{\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/ColpittsClinicalTrialTravel\\\/\",\"https:\\\/\\\/www.linkedin.com\\\/company\\\/colpittsclinical\\\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\\\/\\\/colpittsclinical.com\\\/#\\\/schema\\\/person\\\/7f5c1f500aa2df676ac51a2c6236e2fd\",\"name\":\"clinical\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"hu\",\"@id\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b87dd30974d276d493a32a1592debd029f0e03dcf67fc5da941cf694874d67de?s=96&d=mm&r=g\",\"url\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b87dd30974d276d493a32a1592debd029f0e03dcf67fc5da941cf694874d67de?s=96&d=mm&r=g\",\"contentUrl\":\"https:\\\/\\\/secure.gravatar.com\\\/avatar\\\/b87dd30974d276d493a32a1592debd029f0e03dcf67fc5da941cf694874d67de?s=96&d=mm&r=g\",\"caption\":\"clinical\"},\"url\":\"https:\\\/\\\/colpittsclinical.com\\\/hu\\\/author\\\/cclinical\\\/\"}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"F\u00e9ny der\u00edt\u00e9se a ritka betegs\u00e9gekre: A ritka betegs\u00e9gek napj\u00e1nak \u00fcnnepl\u00e9se \u2013 Colpitts Clinical","description":"A ritka betegs\u00e9gek napja l\u00e9tfont\u00f5z\u00e9s\u0171 eml\u00e9keztet\u0151k\u00e9nt szolg\u00e1l a ritka betegs\u00e9gekkel \u00e9l\u0151 egy\u00e9nek \u00e1ltal tapasztalt kih\u00edv\u00e1sokra.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/colpittsclinical.com\/hu\/feny-deritese-a-ritka-betegsegekre-a-ritka-betegsegek-napjanak-unneplese-alkalmabol\/","og_locale":"hu_HU","og_type":"article","og_title":"Shedding Light on Rare Diseases: Celebrating Rare Disease Day","og_description":"Rare Disease Day serves as a crucial reminder of the challenges faced by individuals living with rare diseases.","og_url":"https:\/\/colpittsclinical.com\/hu\/feny-deritese-a-ritka-betegsegekre-a-ritka-betegsegek-napjanak-unneplese-alkalmabol\/","og_site_name":"Colpitts Clinical","article_publisher":"https:\/\/www.facebook.com\/ColpittsClinicalTrialTravel\/","article_published_time":"2024-02-06T03:32:15+00:00","article_modified_time":"2024-04-22T04:02:09+00:00","og_image":[{"width":1584,"height":628,"url":"https:\/\/colpittsclinical.com\/wp-content\/uploads\/2024\/02\/rare-disease-lg-banner-2024.png","type":"image\/png"}],"author":"clinical","twitter_card":"summary_large_image","twitter_misc":{"Szerz\u0151:":"clinical","Becs\u00fclt olvas\u00e1si id\u0151":"3 perc"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/#article","isPartOf":{"@id":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/"},"author":{"name":"clinical","@id":"https:\/\/colpittsclinical.com\/#\/schema\/person\/7f5c1f500aa2df676ac51a2c6236e2fd"},"headline":"Shedding Light on Rare Diseases: Celebrating Rare Disease Day","datePublished":"2024-02-06T03:32:15+00:00","dateModified":"2024-04-22T04:02:09+00:00","mainEntityOfPage":{"@id":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/"},"wordCount":582,"publisher":{"@id":"https:\/\/colpittsclinical.com\/#organization"},"image":{"@id":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/#primaryimage"},"thumbnailUrl":"https:\/\/i0.wp.com\/colpittsclinical.com\/wp-content\/uploads\/2024\/02\/rare-disease-lg-banner-2024.png?fit=1584%2C628&ssl=1","articleSection":["Rare Diseases"],"inLanguage":"hu"},{"@type":"WebPage","@id":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/","url":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/","name":"F\u00e9ny der\u00edt\u00e9se a ritka betegs\u00e9gekre: A ritka betegs\u00e9gek napj\u00e1nak \u00fcnnepl\u00e9se \u2013 Colpitts Clinical","isPartOf":{"@id":"https:\/\/colpittsclinical.com\/#website"},"primaryImageOfPage":{"@id":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/#primaryimage"},"image":{"@id":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/#primaryimage"},"thumbnailUrl":"https:\/\/i0.wp.com\/colpittsclinical.com\/wp-content\/uploads\/2024\/02\/rare-disease-lg-banner-2024.png?fit=1584%2C628&ssl=1","datePublished":"2024-02-06T03:32:15+00:00","dateModified":"2024-04-22T04:02:09+00:00","description":"A ritka betegs\u00e9gek napja l\u00e9tfont\u00f5z\u00e9s\u0171 eml\u00e9keztet\u0151k\u00e9nt szolg\u00e1l a ritka betegs\u00e9gekkel \u00e9l\u0151 egy\u00e9nek \u00e1ltal tapasztalt kih\u00edv\u00e1sokra.","breadcrumb":{"@id":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/#breadcrumb"},"inLanguage":"hu","potentialAction":[{"@type":"ReadAction","target":["https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/"]}]},{"@type":"ImageObject","inLanguage":"hu","@id":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/#primaryimage","url":"https:\/\/i0.wp.com\/colpittsclinical.com\/wp-content\/uploads\/2024\/02\/rare-disease-lg-banner-2024.png?fit=1584%2C628&ssl=1","contentUrl":"https:\/\/i0.wp.com\/colpittsclinical.com\/wp-content\/uploads\/2024\/02\/rare-disease-lg-banner-2024.png?fit=1584%2C628&ssl=1","width":1584,"height":628,"caption":"Rare Disease Day 2024"},{"@type":"BreadcrumbList","@id":"https:\/\/colpittsclinical.com\/shedding-light-on-rare-diseases-celebrating-rare-disease-day\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/colpittsclinical.com\/"},{"@type":"ListItem","position":2,"name":"Shedding Light on Rare Diseases: Celebrating Rare Disease Day"}]},{"@type":"WebSite","@id":"https:\/\/colpittsclinical.com\/#website","url":"https:\/\/colpittsclinical.com\/","name":"Colpitts Klinikai","description":"klinikai vizsg\u00e1lati utaz\u00e1sszervez\u00e9s","publisher":{"@id":"https:\/\/colpittsclinical.com\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/colpittsclinical.com\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"hu"},{"@type":"Organization","@id":"https:\/\/colpittsclinical.com\/#organization","name":"Colpitts Klinikai","url":"https:\/\/colpittsclinical.com\/","logo":{"@type":"ImageObject","inLanguage":"hu","@id":"https:\/\/colpittsclinical.com\/#\/schema\/logo\/image\/","url":"https:\/\/i0.wp.com\/colpittsclinical.com\/wp-content\/uploads\/2017\/10\/cc-logo-212-1.png?fit=212%2C48&ssl=1","contentUrl":"https:\/\/i0.wp.com\/colpittsclinical.com\/wp-content\/uploads\/2017\/10\/cc-logo-212-1.png?fit=212%2C48&ssl=1","width":212,"height":48,"caption":"Colpitts Clinical"},"image":{"@id":"https:\/\/colpittsclinical.com\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/ColpittsClinicalTrialTravel\/","https:\/\/www.linkedin.com\/company\/colpittsclinical\/"]},{"@type":"Person","@id":"https:\/\/colpittsclinical.com\/#\/schema\/person\/7f5c1f500aa2df676ac51a2c6236e2fd","name":"klinikai","image":{"@type":"ImageObject","inLanguage":"hu","@id":"https:\/\/secure.gravatar.com\/avatar\/b87dd30974d276d493a32a1592debd029f0e03dcf67fc5da941cf694874d67de?s=96&d=mm&r=g","url":"https:\/\/secure.gravatar.com\/avatar\/b87dd30974d276d493a32a1592debd029f0e03dcf67fc5da941cf694874d67de?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/b87dd30974d276d493a32a1592debd029f0e03dcf67fc5da941cf694874d67de?s=96&d=mm&r=g","caption":"clinical"},"url":"https:\/\/colpittsclinical.com\/hu\/author\/cclinical\/"}]}},"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"https:\/\/i0.wp.com\/colpittsclinical.com\/wp-content\/uploads\/2024\/02\/rare-disease-lg-banner-2024.png?fit=1584%2C628&ssl=1","_links":{"self":[{"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/posts\/5027","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/comments?post=5027"}],"version-history":[{"count":6,"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/posts\/5027\/revisions"}],"predecessor-version":[{"id":5038,"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/posts\/5027\/revisions\/5038"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/media\/5031"}],"wp:attachment":[{"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/media?parent=5027"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/categories?post=5027"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/colpittsclinical.com\/hu\/wp-json\/wp\/v2\/tags?post=5027"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}