{"id":2901,"date":"2019-05-02T09:21:58","date_gmt":"2019-05-02T13:21:58","guid":{"rendered":"https:\/\/colpittsclinical.com\/?p=2901"},"modified":"2022-08-29T01:58:04","modified_gmt":"2022-08-29T05:58:04","slug":"improving-access-and-affordability-of-new-orphan-drugs-while-ensuring-continuous-investment","status":"publish","type":"post","link":"https:\/\/colpittsclinical.com\/he\/improving-access-and-affordability-of-new-orphan-drugs-while-ensuring-continuous-investment\/","title":{"rendered":"\u05e9\u05d9\u05e4\u05d5\u05e8 \u05d4\u05e0\u05d2\u05d9\u05e9\u05d5\u05ea \u05d5\u05d4\u05d6\u05de\u05d9\u05e0\u05d5\u05ea \u05e9\u05dc \u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05d9\u05ea\u05d5\u05de\u05d5\u05ea \u05d7\u05d3\u05e9\u05d5\u05ea \u05ea\u05d5\u05da \u05d4\u05d1\u05d8\u05d7\u05ea \u05d4\u05de\u05e9\u05da \u05d4\u05d4\u05e9\u05e7\u05e2\u05d4"},"content":{"rendered":"<p>\u05db\u05d5\u05dc\u05e0\u05d5 \u05d9\u05d5\u05d3\u05e2\u05d9\u05dd \u05db\u05d9 \u05e7\u05d9\u05d9\u05dd \u05e6\u05d5\u05e8\u05da \u05de\u05d5\u05e8\u05db\u05d1 \u05d5\u05de\u05ea\u05de\u05e9\u05da \u05d1\u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05d7\u05d3\u05e9\u05d5\u05ea \u05d1\u05e8\u05d7\u05d1\u05d9 \u05d4\u05e2\u05d5\u05dc\u05dd \u05dc\u05d8\u05d9\u05e4\u05d5\u05dc \u05d1\u05e1\u05e8\u05d8\u05df, \u05d1\u05de\u05d7\u05dc\u05d5\u05ea \u05d0\u05d9\u05de\u05d5\u05e0\u05d5\u05dc\u05d5\u05d2\u05d9\u05d5\u05ea \u05d5\u05d1\u05de\u05d7\u05dc\u05d5\u05ea \u05e0\u05d3\u05d9\u05e8\u05d5\u05ea \u05d5\u05d9\u05ea\u05d5\u05de\u05d5\u05ea.  \u05d4\u05d0\u05ea\u05d2\u05e8 \u05d1\u05d4\u05d1\u05d0\u05ea \u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05d7\u05d3\u05e9\u05d5\u05ea \u05dc\u05e9\u05d5\u05e7 \u05dc\u05d8\u05d9\u05e4\u05d5\u05dc \u05d1\u05e1\u05d5\u05d2\u05d9\u05dd \u05d0\u05dc\u05d4 \u05e9\u05dc \u05de\u05d7\u05dc\u05d5\u05ea \u05de\u05ea\u05de\u05d5\u05d3\u05d3 \u05e2\u05dd \u05d4\u05e2\u05dc\u05d9\u05d9\u05d4 \u05d1\u05e2\u05dc\u05d5\u05d9\u05d5\u05ea \u05d4\u05e4\u05d9\u05ea\u05d5\u05d7, \u05d4\u05d9\u05d9\u05e6\u05d5\u05e8 \u05d5\u05d4\u05e9\u05d9\u05d5\u05d5\u05e7 \u05e9\u05dc \u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05d7\u05d3\u05e9\u05d5\u05ea \u05d0\u05dc\u05d4. \u05db\u05ea\u05d5\u05e6\u05d0\u05d4 \u05de\u05d1\u05e2\u05d9\u05d4 \u05de\u05ea\u05de\u05e9\u05db\u05ea \u05d6\u05d5, \u05db\u05e0\u05e1 \u05d4\u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05d4\u05d9\u05ea\u05d5\u05de\u05d5\u05ea \u05d4\u05e2\u05d5\u05dc\u05de\u05d9 2019 \u05d0\u05e1\u05e3 \u05e4\u05d0\u05e0\u05dc \u05e9\u05dc \u05de\u05e0\u05d4\u05d9\u05d2\u05d9\u05dd \u05de\u05d5\u05d1\u05d9\u05dc\u05d9\u05dd \u05d1\u05e2\u05d5\u05dc\u05dd \u05e4\u05d9\u05ea\u05d5\u05d7 \u05d4\u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05dc\u05de\u05d7\u05dc\u05d5\u05ea \u05e0\u05d3\u05d9\u05e8\u05d5\u05ea \u05d5\u05d9\u05ea\u05d5\u05de\u05d5\u05ea \u05db\u05d3\u05d9 \u05dc\u05d3\u05d5\u05df \u05d1\u05d7\u05d9\u05d3\u05d5\u05e9\u05d9\u05dd \u05d1\u05ea\u05e2\u05e9\u05d9\u05d9\u05d4, \u05d5\u05d1\u05de\u05e7\u05e8\u05d9\u05dd \u05de\u05e1\u05d5\u05d9\u05de\u05d9\u05dd \u05d1\u05d7\u05d1\u05e8\u05d5\u05ea \u05e9\u05dc\u05d4\u05dd, \u05db\u05d3\u05d9 \u05dc\u05e1\u05d9\u05d9\u05e2 \u05d1\u05d4\u05e9\u05d2\u05ea \u05d0\u05d9\u05d6\u05d5\u05df \u05d1\u05d9\u05df \u05e0\u05d2\u05d9\u05e9\u05d5\u05ea \u05dc\u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05dc\u05d1\u05d9\u05df \u05de\u05d7\u05d9\u05e8\u05df.<\/p>\n<p>\u05d3\u05df \u05e4\u05d0\u05d2\u05d4, \u05de\u05e0\u05db\u201c\u05dc Spark Therapeutics, \u05d4\u05d5\u05d1\u05d9\u05dc \u05d3\u05d9\u05d5\u05df \u05e4\u05d0\u05e0\u05dc \u05de\u05e8\u05ea\u05e7 \u05e9\u05d1\u05d5 \u05d3\u05d9\u05d1\u05e8 \u05e2\u05dc \u05d4\u05e7\u05de\u05ea Spark Path, \u05d0\u05e9\u05e8 \"\u05de\u05e6\u05d9\u05e2\u05d4...<em>\u05d4\u05e0\u05d7\u05d5\u05ea \u05de\u05d1\u05d5\u05e1\u05e1\u05d5\u05ea \u05ea\u05d5\u05e6\u05d0\u05d5\u05ea \u05d5\u05de\u05d5\u05d3\u05dc \u05d4\u05ea\u05e7\u05e9\u05e8\u05d5\u05ea \u05d7\u05d3\u05e9\u05e0\u05d9 \u05d4\u05ea\u05d5\u05de\u05db\u05d9\u05dd \u05d1\u05d2\u05d9\u05e9\u05ea \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d1\u05d0\u05e8\u05d4\u201d\u05d1, \u05ea\u05d5\u05da \u05e9\u05de\u05d9\u05e8\u05d4 \u05e2\u05dc \u05d4\u05e4\u05d7\u05ea\u05ea \u05d4\u05e1\u05d9\u05db\u05d5\u05df \u05d5\u05d4\u05e0\u05d8\u05dc \u05d4\u05db\u05e1\u05e4\u05d9 \u05e2\u05dc \u05d4\u05de\u05e9\u05dc\u05de\u05d9\u05dd \u05d5\u05de\u05e8\u05db\u05d6\u05d9 \u05d4\u05d8\u05d9\u05e4\u05d5\u05dc. Spark Path \u05db\u05d5\u05dc\u05dc \u05ea\u05d5\u05db\u05e0\u05d9\u05ea \u05d4\u05e0\u05d7\u05d5\u05ea \u05dc\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd, \u05d1\u05de\u05e1\u05d2\u05e8\u05ea\u05d4 \u05d4\u05dd \u05de\u05e7\u05d1\u05dc\u05d9\u05dd \u05d4\u05e0\u05d7\u05d4 \u05d1\u05e9\u05e0\u05d4 \u05d4\u05e8\u05d0\u05e9\u05d5\u05e0\u05d4 \u05d5\u05d1\u05e9\u05e0\u05d4 \u05d4\u05e9\u05dc\u05d9\u05e9\u05d9\u05ea \u05d0\u05dd \u05d4\u05de\u05d5\u05e6\u05e8 \u05e9\u05d4\u05dd \u05e0\u05d5\u05d8\u05dc\u05d9\u05dd \u05d0\u05d9\u05e0\u05d5 \u05d9\u05e2\u05d9\u05dc.\u00a0 <\/em><\/p>\n<p><em>\u05de\u05ea\u05d5\u05da \u05d0\u05ea\u05e8 Spark: \u201c<\/em>LUXTURNA \u05d5\u05d8\u05d9\u05e4\u05d5\u05dc\u05d9\u05dd \u05d7\u05d3-\u05e4\u05e2\u05de\u05d9\u05d9\u05dd \u05e4\u05d5\u05d8\u05e0\u05e6\u05d9\u05d0\u05dc\u05d9\u05d9\u05dd \u05d0\u05d7\u05e8\u05d9\u05dd \u05de\u05ea\u05de\u05d5\u05d3\u05d3\u05d9\u05dd \u05e2\u05dd \u05d0\u05ea\u05d2\u05e8\u05d9\u05dd \u05d9\u05d9\u05d7\u05d5\u05d3\u05d9\u05d9\u05dd \u05d1\u05ea\u05d7\u05d5\u05dd \u05d1\u05d9\u05d8\u05d5\u05d7 \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea, \u05dc\u05d0\u05d5\u05e8 \u05d4\u05e0\u05d4\u05dc\u05d9\u05dd \u05d5\u05d4\u05ea\u05e7\u05e0\u05d5\u05ea \u05d4\u05e7\u05d9\u05d9\u05de\u05d9\u05dd \u05d1\u05de\u05e2\u05e8\u05db\u05ea \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05d4\u05d0\u05de\u05e8\u05d9\u05e7\u05d0\u05d9\u05ea. \u05d4\u05de\u05d7\u05e1\u05d5\u05de\u05d9\u05dd \u05d4\u05de\u05d5\u05e0\u05e2\u05d9\u05dd \u05d4\u05e6\u05e2\u05ea \u05de\u05d5\u05d3\u05dc\u05d9\u05dd \u05d7\u05dc\u05d5\u05e4\u05d9\u05d9\u05dd \u05db\u05d5\u05dc\u05dc\u05d9\u05dd \u05d0\u05ea \u05d4\u05ea\u05de\u05e7\u05d3\u05d5\u05ea \u05d4\u05de\u05e2\u05e8\u05db\u05ea \u05d1\u05e2\u05e8\u05da \u05dc\u05d8\u05d5\u05d5\u05d7 \u05d4\u05e7\u05e6\u05e8 (\u05d1\u05e2\u05d9\u05e7\u05e8 \u05de\u05e9\u05d5\u05dd \u05e9\u05e8\u05d5\u05d1 \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05de\u05d7\u05dc\u05d9\u05e4\u05d9\u05dd \u05d7\u05d1\u05e8\u05d5\u05ea \u05d1\u05d9\u05d8\u05d5\u05d7 \u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05d1\u05de\u05de\u05d5\u05e6\u05e2 \u05db\u05dc \u05e9\u05dc\u05d5\u05e9 \u05e9\u05e0\u05d9\u05dd), \u05d3\u05e8\u05d9\u05e9\u05d5\u05ea \u05d3\u05d9\u05d5\u05d5\u05d7 \u05de\u05d7\u05d9\u05e8\u05d9\u05dd \u05de\u05de\u05e9\u05dc\u05ea\u05d9\u05d5\u05ea \u05e9\u05d0\u05d9\u05e0\u05df \u05de\u05ea\u05d5\u05db\u05e0\u05e0\u05d5\u05ea \u05dc\u05e9\u05e7\u05e3 \u05d4\u05e1\u05d3\u05e8\u05d9\u05dd \u05de\u05e1\u05d5\u05d9\u05de\u05d9\u05dd \u05d4\u05de\u05d1\u05d5\u05e1\u05e1\u05d9\u05dd \u05e2\u05dc \u05ea\u05d5\u05e6\u05d0\u05d5\u05ea, \u05d5\u05dc\u05db\u05df \u05de\u05d2\u05d1\u05d9\u05dc\u05d5\u05ea \u05d0\u05ea \u05d9\u05db\u05d5\u05dc\u05ea\u05d5 \u05e9\u05dc \u05d4\u05d9\u05e6\u05e8\u05df \u05dc\u05d4\u05e6\u05d9\u05e2 \u05d4\u05e0\u05d7\u05d5\u05ea \u05de\u05e9\u05de\u05e2\u05d5\u05ea\u05d9\u05d5\u05ea \u05d4\u05de\u05d1\u05d5\u05e1\u05e1\u05d5\u05ea \u05e2\u05dc \u05d1\u05d9\u05e6\u05d5\u05e2\u05d9\u05dd, \u05d1\u05de\u05d9\u05d5\u05d7\u05d3 \u05e2\u05d1\u05d5\u05e8 \u05de\u05d7\u05dc\u05d5\u05ea \u05e2\u05dd \u05d0\u05d5\u05db\u05dc\u05d5\u05e1\u05d9\u05d9\u05ea \u05d7\u05d5\u05dc\u05d9\u05dd \u05e7\u05d8\u05e0\u05d4 \u05d5\u05de\u05d5\u05d3\u05dc\u05d9\u05dd \u05d4\u05e4\u05e6\u05d4 \u05de\u05e1\u05d5\u05d1\u05db\u05d9\u05dd, \u05d4\u05de\u05d5\u05e1\u05d9\u05e4\u05d9\u05dd \u05e2\u05dc\u05d5\u05d9\u05d5\u05ea \u05d5\u05e1\u05d9\u05db\u05d5\u05e0\u05d9\u05dd \u05e4\u05d9\u05e0\u05e0\u05e1\u05d9\u05d9\u05dd \u05dc\u05e6\u05d3\u05d3\u05d9\u05dd \u05d4\u05de\u05e2\u05d5\u05e8\u05d1\u05d9\u05dd \u05d1\u05d0\u05e1\u05e4\u05e7\u05d4 \u05d5\u05d1\u05d4\u05d7\u05d6\u05e8 \u05e9\u05dc \u05ea\u05e8\u05d5\u05e4\u05d5\u05ea \u05de\u05d9\u05d5\u05d7\u05d3\u05d5\u05ea \u05d5\u05d8\u05d9\u05e4\u05d5\u05dc \u05e8\u05e4\u05d5\u05d0\u05d9 \u05de\u05d9\u05d5\u05d7\u05d3.\u201d<\/p>\n<p>\u05de\u05e8 \u05e4\u05d0\u05d2\u05d4 \u05d4\u05de\u05e9\u05d9\u05da \u05d5\u05d4\u05e1\u05d1\u05d9\u05e8 \u05db\u05d9 \u05db\u05ea\u05d5\u05e6\u05d0\u05d4 \u05de-Spark Path, Spark Therapeutics \u05d8\u05d9\u05e4\u05dc\u05d4 \u05d1\u05d9\u05d5\u05ea\u05e8 \u05d7\u05d5\u05dc\u05d9\u05dd \u05d1\u05e9\u05e0\u05d4 \u05d0\u05d7\u05ea \u05dc\u05d0\u05d7\u05e8 \u05d4\u05d0\u05d9\u05e9\u05d5\u05e8 \u05de\u05d0\u05e9\u05e8 \u05d1\u05e2\u05e9\u05e8 \u05e9\u05e0\u05d5\u05ea \u05d4\u05e4\u05d9\u05ea\u05d5\u05d7.<\/p>\n<p>\u05d1\u05e0\u05d5\u05e1\u05e3, \u05d0\u05de\u05d9\u05dc \u05e7\u05d0\u05e7\u05d9\u05e1, \u05de\u05e0\u05db\u201c\u05dc Ultragenyx, \u05d4\u05e6\u05d4\u05d9\u05e8 \u05db\u05d9 \u201d\u05db\u05dc \u05d7\u05d5\u05dc\u05d4 \u05e9\u05d9\u05db\u05d5\u05dc \u05dc\u05d4\u05e4\u05d9\u05e7 \u05ea\u05d5\u05e2\u05dc\u05ea \u05de\u05d4\u05ea\u05e8\u05d5\u05e4\u05d4 \u05e6\u05e8\u05d9\u05da \u05dc\u05e7\u05d1\u05dc \u05d0\u05dc\u05d9\u05d4 \u05d2\u05d9\u05e9\u05d4\". Ultragenyx \u05d4\u05e6\u05d9\u05e2\u05d4 \u05de\u05d5\u05d3\u05dc \u05ea\u05de\u05d7\u05d5\u05e8 \u05de\u05ea\u05d5\u05df \u05d9\u05d5\u05ea\u05e8, \u05e2\u05dd \u05d4\u05ea\u05d7\u05d9\u05d9\u05d1\u05d5\u05ea \u05de\u05e6\u05d3 \u05d4\u05de\u05e9\u05dc\u05de\u05d9\u05dd \u05dc\u05ea\u05de\u05d5\u05da \u05d1\u05d0\u05d5\u05e4\u05df \u05e9\u05d5\u05d5\u05d4 \u05d1\u05d7\u05d5\u05dc\u05d9\u05dd \u05de\u05d1\u05d5\u05d2\u05e8\u05d9\u05dd \u05d5\u05d9\u05dc\u05d3\u05d9\u05dd. \u05e7\u05d0\u05e7\u05d9\u05e1 \u05d4\u05de\u05e9\u05d9\u05da \u05d5\u05d4\u05e1\u05d1\u05d9\u05e8 \u05db\u05d9 \u05d4\u05e2\u05d3\u05e4\u05ea \u05d4\u05de\u05e9\u05dc\u05de\u05d9\u05dd \u05d4\u05d9\u05d9\u05ea\u05d4 \u05d1\u05e2\u05d1\u05e8 \u05dc\u05d4\u05ea\u05de\u05e7\u05d3 \u05d1\u05e8\u05e4\u05d5\u05d0\u05ea \u05d9\u05dc\u05d3\u05d9\u05dd, \u05de\u05db\u05d9\u05d5\u05d5\u05df \u05e9\u05e6\u05e8\u05db\u05d9\u05dd \u05d1\u05ea\u05d7\u05d5\u05dd \u05d6\u05d4 \u05e0\u05ea\u05e4\u05e1\u05d5 \u05db\u05d1\u05dc\u05ea\u05d9 \u05de\u05e1\u05d5\u05e4\u05e7\u05d9\u05dd \u05d1\u05de\u05d9\u05d3\u05d4 \u05e8\u05d1\u05d4 \u05d9\u05d5\u05ea\u05e8.  \u05e2\u05dd \u05d6\u05d0\u05ea, \u05e7\u05d0\u05e7\u05d9\u05e1 \u05e2\u05d5\u05de\u05d3 \u05e2\u05dc \u05d3\u05e2\u05ea\u05d5 \u05db\u05d9 \u05d7\u05d9\u05d5\u05e0\u05d9 \u05e9\u05db\u05dc \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d9\u05e7\u05d1\u05dc\u05d5 \u05d2\u05d9\u05e9\u05d4 \u05dc\u05ea\u05e8\u05d5\u05e4\u05d4 \u05d0\u05dd \u05d4\u05dd \u05d9\u05db\u05d5\u05dc\u05d9\u05dd \u05dc\u05d4\u05e4\u05d9\u05e7 \u05de\u05de\u05e0\u05d4 \u05ea\u05d5\u05e2\u05dc\u05ea, \u05d5\u05dc\u05d0 \u05e8\u05e7 \u05d0\u05dc\u05d4 \u05e2\u05dd \u05e6\u05d5\u05e8\u05da \u05d1\u05dc\u05ea\u05d9 \u05de\u05e1\u05d5\u05e4\u05e7 \u05d4\u05e0\u05ea\u05e4\u05e1 \u05db\u05d2\u05d1\u05d5\u05d4 \u05d9\u05d5\u05ea\u05e8. \u05dc\u05e1\u05d9\u05db\u05d5\u05dd, \u05d4\u05d5\u05d0 \u05e6\u05d9\u05d9\u05df \u05d3\u05d5\u05d2\u05de\u05d4 \u05dc\u05d7\u05d3\u05e9\u05e0\u05d5\u05ea \u05de\u05e6\u05d3 \u05de\u05e4\u05ea\u05d7\u05ea \u05d4\u05ea\u05e8\u05d5\u05e4\u05d5\u05ea Vertex \u05d1\u05d0\u05d9\u05e8\u05dc\u05e0\u05d3, \u05e9\u05dd \u05d4\u05e1\u05db\u05d9\u05de\u05d5 \u05e2\u05dd \u05de\u05e2\u05e8\u05db\u05ea \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05d4\u05d0\u05d9\u05e8\u05d9\u05ea \u05dc\u05d8\u05e4\u05dc \u05d1\u05db\u05dc \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d1\u05de\u05d7\u05d9\u05e8 \u05e7\u05d1\u05d5\u05e2 \u2013 \u05d3\u05d5\u05d2\u05de\u05d4 \u05de\u05e9\u05db\u05e0\u05e2\u05ea \u05dc\u05d7\u05d3\u05e9\u05e0\u05d5\u05ea \u05e9\u05dc\u05d3\u05e2\u05ea\u05d5 \u05de\u05e2\u05e8\u05db\u05ea \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05d4\u05d0\u05de\u05e8\u05d9\u05e7\u05d0\u05d9\u05ea \u05d9\u05db\u05d5\u05dc\u05d4 \u05dc\u05d4\u05e4\u05d9\u05e7 \u05ea\u05d5\u05e2\u05dc\u05ea \u05de\u05d4\u05ea\u05e7\u05d3\u05de\u05d5\u05ea \u05dc\u05db\u05d9\u05d5\u05d5\u05df \u05d6\u05d4.<\/p>\n<p>\u05d1\u05e8\u05d5\u05e8 \u05e9\u05d0\u05d9\u05df \u05e4\u05ea\u05e8\u05d5\u05df \u05e4\u05e9\u05d5\u05d8 \u05dc\u05d1\u05e2\u05d9\u05d4 \u05de\u05d5\u05e8\u05db\u05d1\u05ea \u05d6\u05d5. \u05e2\u05dd \u05d6\u05d0\u05ea, \u05db\u05d0\u05e9\u05e8 \u05de\u05e0\u05d4\u05d9\u05d2\u05d9 \u05d4\u05e2\u05e0\u05e3 \u05e9\u05dc\u05e0\u05d5 \u05d1\u05d5\u05d7\u05e8\u05d9\u05dd \u05dc\u05e9\u05ea\u05e3 \u05e4\u05e2\u05d5\u05dc\u05d4 \u05d5\u05dc\u05d7\u05d3\u05e9 \u05d9\u05d7\u05d3 \u05db\u05d3\u05d9 \u05dc\u05d4\u05e0\u05d9\u05e2 \u05e9\u05d9\u05e0\u05d5\u05d9 \u05e9\u05d9\u05d0\u05e4\u05e9\u05e8 \u05e0\u05d2\u05d9\u05e9\u05d5\u05ea \u05e8\u05d1\u05d4 \u05d9\u05d5\u05ea\u05e8 \u05d5\u05de\u05d7\u05d9\u05e8\u05d9\u05dd \u05e0\u05d5\u05d7\u05d9\u05dd \u05d9\u05d5\u05ea\u05e8, \u05db\u05d5\u05dc\u05dd \u05d9\u05d5\u05e6\u05d0\u05d9\u05dd \u05e0\u05e9\u05db\u05e8\u05d9\u05dd \u2013 \u05db\u05d5\u05dc\u05dc \u05d4\u05d7\u05d1\u05e8 \u05d4\u05d7\u05e9\u05d5\u05d1 \u05d1\u05d9\u05d5\u05ea\u05e8 \u05d1\u05d3\u05d9\u05d5\u05df \u05d6\u05d4, \u05d4\u05de\u05d8\u05d5\u05e4\u05dc.<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>We all know that there is a complex and continued unmet need for new medicines across the Globe to treat cancer, immunological and rare and orphan diseases.\u00a0 The challenge to bring new drugs to market to treat these types of indications is met with the rising cost of developing, producing and marketing these new drugs.\u00a0 [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":2904,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[6,9],"tags":[],"class_list":["post-2901","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-clinical-trials","category-events"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>improving-access-of-new-orphan-drugs<\/title>\n<meta name=\"description\" content=\"It is a challenge to bring new drugs to market. 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